On Monday, Kai had a few appointments in the cities. The first on was a gastronenterology appointment. Kai's dietitian also met up with us there. We talked about several things. The main thing was about why Kai is not gaining weight. We talked about his digestion, his diet and feedings. They took a stool sample to check for fat malabsorption. They started him on a low dose of erythromycin. He will take this three times a day. This is to help move things through his system. He seems like it was taking a lot long for Kai's feedings to move through his system. If he tolerates this, then the idea would to increase his volume of feedings. She had also suggested for him to see an endocrinologist. We are actually in the process of getting that set up for a different reason. So hopefully he will tolerate this medicine and we will be able to increase his volume of feedings. We have tried several different things, and so far he hasn't tolerated those other options. He weighed 15 pounds on Monday as well.
Then we had Gillette appointments. Kai had x-rays done of his hips again. His doctor again does not recommend surgery any time soon to put his dislocated hips back into place. It's too big of a surgery for little Kai and then chances of the his hips actually staying in place are low. He would probably be worst of if he had this surgery (right now anyway). We got the order for Kai's AFO's (leg braces) and he got molded for his AFO's. He will be getting them on September 14. This will be so nice since he wants to stand. These will give him the support that he needs. His doctor seems pestimistic (at least I think so)about him being able to walk. Time will tell. Kai is a very determined little boy! We also meet up with the rehabilitation doctor and had a cranio cap adjustment. It was a long day!
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