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Working on walking

Kai at therapy

Kai is on the go!

Kai is moving all over the place. We had to finally put the gate back up at the top of the stairs. He does not like to just stay in the living area. He loves to chase after Gavin and Jace. He is still just tummy crawling, but he can get places fast! He uses all of us upper body strength and basically drags his back end. Check out the video in the previous post.

Today Kai saw the pulmonologist. From listening and looking at the most recent chest x-ray, everything looks pretty good right at this time. Still don't know exactly what that spot is on his lung. This doctor is going to try to coordinate a CT scan to be done at the time of his surgery. This will give him more information on Kai and then we will go from there once that is done. Otherwise right now, Kai obviously needs to avoid sick people and the doc said to make sure he isn't around 2nd hand smoke. I don't remember all the technical stuff he said about some of Kai's pulmonary stuff. I might have to just a give another little update when I get the dictation from this appointment.

We finally got a surgery date for Kai. He will have surgery on Friday, December 18th up at Children's. It's a little later than I had hoped for, but it was the earliest that they could coordinate with both of the doctors that will be performing the surgeries. It will be a busy day for him. Besides having the surgeries, he will also have some blood work done, possibly a skin biopsy, and hopefully the CT scan. Kai will then be in the hospital for about 3-5 days.

We get a little break from Kai's doctor appointments. No scheduled appointments now until December 10th! It is a much needed break.

Until the next post!

Video of Kai chasing a balloon

A little update on Kai

Kai has recently visited the eye doctor and cardiologist. Eye doc says things look good. We need to continue the eye ointment at night. Kai's right eye doesn't always shut when he sleeps, so he gets dry eye. Otherwise, he's good right now in that area. He will see the eye doc again in 4 months. He also saw a cardiologist. They looked at his previous chest x-ray and did an echo cardiogram on his heart. Things look great as far as his heart and he doesn't have to go back for 3 years!

Last week, Kai met up with a urologist. His testicles have not dropped yet. He will have that surgery done when he has his other surgery. We met up with the surgeon and talked over things about his surgery. Kai will have a j-tube placement done. So he will have a second feeding tube (a second hole) put in. He will have both surgeries done at the same time up at Children's Hospital. He will also have some different blood work done and possibly another skin biopsy. He will be in the hospital for 3-5 days, depending on how he is doing. We have not got a surgery date yet. Hopefully we will find out the date soon. Kai also met up with an endocrinologist last week. At this point, this doc has nothing to help Kai, especially since he is growing. Even though his growth is not at the pace we would like it at.

On Monday, Kai gets to visit the pulmonalogist (sp?) --lung doc and he is also having a car seat evaluation done at Gillette. After these appointments, Kai's busy appointment schedule should tame down for a little while. It has been an extremely busy month for appointments for him.

Until the next update!

Pumpkins and Halloween

Kai

Jace

Gavin

Random

Kai's first time sitting up by himself in the bath tub! He really enjoys splashing!

So sleepy!

Kai playing with his friend Ethan

Kai's b-day reaction

Kai had some allergic reation to his b-day cake. His hands and a little of his face swelled. Not exactly sure what it was, but it did have peanut stuff in the cake. He will be having a peanut allergy test done at the time of his surgery.