12-30-09 hospital visit

Mommy and Kai
Kai hooked up to a lot of things, he was getting an EKG done and just slept right through it

Kai getting a sponge bath at the hospital. He was having fun playing in the tub of water next to him.

Kai is doing a little better. He was a little perkier yesterday. He even cracked a few smiles and let out a few giggles. He is still on the TPN IV with lipids. They may start pediatlyte again today. Monday and Tuesday night, Kai's heart rate dipped down on the overnight. So yesterday, they did an EKG (don't know the results yet) and then they hooked him up to a heart monitor and watched his heart rate. Yesterday they ran blood work again. I don't remember all the results, but they ran one test that was an infection indicator. This showed that Kai still has an infection. I'm not sure what their plan, maybe switch to a different antibiotic. The skin wound specialist came by and put this special patch thing over his J stoma site to help the site heal better. Kai also got a visit from his genetics doctor. She had explained some things about the skin biopsy, but I wouldn't be able to write about it even if I really tried...too many scientific names LOL! It was great that she had visit. She is a wonderful doctor and we know that Kai is in good hands with her.

Gavin and Jace are having a hard time with this all. They both really miss Kai and want to visit him. Gavin doesn't understand why he can't visit Kai. He told him "I got to visit him before" and then brought out the picture of when the boys got to visit Kai when he was in the NICU. I feel really bad. I just keep telling them that they aren't my rules, they are the hospital. I try to explain about all the icky germs. It's tough! They nice thing is they have been getting a lot of Grandma and Grandpa time. The love hanging out with them. They also got to play at Angie's yesterday. So that was nice that the got to play with some kids. It's tough as parent getting pulled in every direction and always know how to divide yourself.