Monday, November 03, 2008

Kai is doing well with his tube feeding. Every couple of feedings they up the amount to get him back to the amount that he was at before surgery. Last night was the first time that I participated in tube feeding him. Kai now weighs 6 lbs 4 ozs. It was so nice to sit and hold him last night. We didn't go up there on Saturday so it had been a little longer. When we were there last night, we had looked through his chart and found that the genetics doctor had stopped in on Friday. In the notes in his chart, it says that she believes that Kai has Type II Cutis Laxa. We have not actually talked to the doctor about this, nor have we been actually informed about this. We knew about the cutis laxa, it is latin for loose skin. So hopefully we will find out a little more about this when we talk to the doctor. I talked to his regular doctor yesterday and he said that it is possible for Kai to be discharge on Tuesday and if not that day then Wednesday. We are also waiting for the orthopedic doctor to see Kai. I am attaching a couple of pictures. The one is of Kai tube feeding. His arm is not in a cast, it is just bandage up to hold the IV in. The other picture is of the boys on their new bunkbeds. We moved Jace back into the same room with Gavin. Until the next post!

1 comment:

~Dinah said...

from one of your "Friends" at PCI -- Congratulations on bringing little Kai home!
Dinah
Maddiesmommy2