We still don't know what is wrong with Kai, but whatever it is, it is rare. It could be awhile before we know anything. They are taking some blood from him tomorrow to send off for some tests. They are looking at his copper levels and then testing for Menkes disease or Occipital Horn Syndrome. Levi did some research on connective tissue disorders and came across Larsens Syndrome. Kai has a lot of characteristics of this Larsens Syndrome. This would be a question that we would have to ask his doctor.

Every day Kai seems to be doing better and is looking better. This weekend we held him a lot. Levi and him snoozed together in a recliner a few times. It was really nice to be able to do that. I have also been taking part in his diaper changes. The first one that I did, I was so scared to do it. I have never been so scared to change a diaper before. Now I feel comfortable doing it. It is definitely different than changing a regular diaper. He has been breathing good so that is checked off the list of things that he has to accomplish in order to come home. He has been doing good with holding his body temp. Tonight they are starting to wrap him in blankets and turn off the warmer. So this is a step closer to checking this off the list. We will see how well he can maintain his body temp on his own. Tomorrow they are going to re-evaluate his feeding and possible try to nipple feed him. Hopefully he will do well it. Once he can do well enough with bottle feeding then he should be able to come home. We are hoping by the end of this week, but we will have to see how well he does. It has been so nice to sit and cuddle with him. Hopefully soon we will be able to do that with him in our own home.

Thanks again for everyone's support, prayers and thoughts,