A little update on Kai

I am getting discharged this morning. Kai will probably be at the Children's Hospital for a couple of weeks. It is too early to determine exactly when he gets to come home. We have to take things with him day by day. It is going to be really tough having him up here and living so far away. But at least we know that he is in good hands.

At this point we still have a lot of unknown questions and it may be awhile before we get answers to these questions. As of right now they have evaluated Kai in many different ways. They have a handful of doctors look at him and have run many tests. At this point they are looking at that he may have some kind of Connective Tissue Disorder. From my understanding there are many different types and they need to narrow it down so that we know what is best for Kai. This would be why Kai has such loose skin and joint issues. He has the "old wrinkly man" look. His hips are dislocated. They have him on a special kind of cushion thing to keep him comfortable. I believe that an orthopedic doctor is going to look at his hips today. Because his chin is kind of small they think that his tongue gets in his way of breathing, but he is able to get back on track with his breathing on his own. Because of this they are holding off on feeding him. So he is getting nutrients through an IV. Today an eye doctor is going to look at his eyes also. They are looking for some specific things, but of course, I can't remember those exact things. On his one foot he has the middle 2 two that are webbed together at the first joint and the last two toes are webbed together at both joints. Yesterday he had an X-Ray done (that is how they discovered the dislocated hips) and ultrasounds. The ultrasounds looked good. He had his brain looked at also and I believe that they said that the structure of his brain looked good. It is so much to take in and a lot to understand. Each day we should learn a little. Today they are doing some cooper test on him. They want to start ruling out things. So this is going to be a day by day kind of thing. He has to be doing certain things on his own before he can come home. It is going to be a huge transition when does get to come home. We are also going to have to learn some special things in order to provide him with the care that he needs when does get to come home.

Levi is bringing Gavin and Jace up here so that they can see their baby brother. Gavin was really upset last night because he wanted to see Baby Kai and he didn't understand why Baby Kai wasn't going to come home when I do. We have a tough road ahead of us, but we will get through this. Kai has proven to us how strong he is. He has shown us that he is a fighter and he is determined.