Tuesday, July 22, 2008

Update - June 20th

At the beginning of June we finished our basement. What a nice relief! It is nice to relax a little in the evenings. I moved daycare to the basement. It is nice to have a separate area for daycare. I get to "go home" at the end of the day.

Some of you know what has been going on with my pregnancy, but for those who don't, this is a little update. I went in for my regular ultrasound on June 4th, hoping to find out if baby was a boy or girl. We were unable at that time to find out because baby did not cooperate and was curled up. Unfortunately my ultrasound did not go that well. There were 4 concerns with the baby at that point. I was sent over to see my doctor right away and she scheduled me for an ultrasound up at Abbott. I had my appointment at Abbott Northwestern Hospital on June 9th. Things with the baby aren't going very well. They did an amniocentesis. At this point the baby has swelling around it's tummy, 2 cysts on the brain, cystic hygroma on the back of the neck (this is probably one of the main concerns); all of this I knew at my last appointment. At Abbott, I found out that there is something wrong with the baby's nose, either missing a bone, the bone is shorter or something along that line and they said that the baby's hands were clenced. By all of this information, at this point it is being determined that there are some deformities with baby and baby has some kind of syndrome. At that point, chances of baby surviving were not good and it didn't sound like those chances were going to increase. We also learned that baby is a BOY. Which we were then able to rule out Turner's Syndrome since that is only in girls. We have gotten the results back from the amnio and that came back with no chromosomal disorders. This is good thing, because this rules out a lot of things. This is also a bad thing, because now we are left with the unknown. Before we knew this, there was some focus on baby having Trisomy 18. Which there is no survival chance, but that has now been ruled out. This week I went in for a blood test to rule out CMV and the result came back negative. So we keep ruling things out, but still left with unknown. I am scheduled for another ultrasound up at Abbott on July 7. Hopefully we will learn more at that time. So we just play the waiting game now.

Jace had tubes put in his ears (again) on June 11th. Hopefully this will help with his speech. Levi and I have been trying to work with him and his speech.

The boys are enjoying summer so far. We are trying to do more family things, since we have been so busy with everything since the tornado. This is all for now. I will try to keep this blogging more up to date.

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