Kai has recently visited the eye doctor and cardiologist. Eye doc says things look good. We need to continue the eye ointment at night. Kai's right eye doesn't always shut when he sleeps, so he gets dry eye. Otherwise, he's good right now in that area. He will see the eye doc again in 4 months. He also saw a cardiologist. They looked at his previous chest x-ray and did an echo cardiogram on his heart. Things look great as far as his heart and he doesn't have to go back for 3 years!
Last week, Kai met up with a urologist. His testicles have not dropped yet. He will have that surgery done when he has his other surgery. We met up with the surgeon and talked over things about his surgery. Kai will have a j-tube placement done. So he will have a second feeding tube (a second hole) put in. He will have both surgeries done at the same time up at Children's Hospital. He will also have some different blood work done and possibly another skin biopsy. He will be in the hospital for 3-5 days, depending on how he is doing. We have not got a surgery date yet. Hopefully we will find out the date soon. Kai also met up with an endocrinologist last week. At this point, this doc has nothing to help Kai, especially since he is growing. Even though his growth is not at the pace we would like it at.
On Monday, Kai gets to visit the pulmonalogist (sp?) --lung doc and he is also having a car seat evaluation done at Gillette. After these appointments, Kai's busy appointment schedule should tame down for a little while. It has been an extremely busy month for appointments for him.
Until the next update!
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