Saturday, September 19, 2009

Kai is 11 months!

Kai turned 11 months old on September 14th. I can't believe he is going to be ONE next month. Of course he doesn't look his age at all. He weighs 15 pounds and is about 27 inches long. Kai has been staying healthy so far. He is very active, rolls around all over the place. He is working on getting up on all fours. We have caught him a few times on all fours, but it last like a second, not enough time to snap a picture. He is done wearing the cranio cap. He does not like to wear it and really crabs when he has it on, so we have called it quits on that. He had the cranio cap for about 6 months. He has gotten smart with his hearing aids and is always pulling them out...little stinker!



Our biggest challenge...feedings. We just recently started Kai on some medical food; Neocate Nutra (it's kinda like baby cereal). He tolerates it well and seems to like it. We have changed his diet a little due to him getting irritated by certain foods. We have cut out meat proteins, apples and bananas. So he is on a limited variety of baby foods. He still usually gets 3 oral feedings a day. He takes anywhere from 1 ounce to 4 ounces. He is currently up to 121 mls per feeding. We have been trying to do 5 feedings during the day and then either one feeding during the night or a drip feeding overnight. It's hard to do the night one. At the end of August, GI had decided to put on medicine to help move food along in Kai in hopes to increase his volume of feedings. This really hasn't worked. They have decided to switch him to G-J Tube (Gastrojejunal tube). He currently has a G-tube and that goes right into his stomach. A G-J Tube is a feeding tube (transgastric) that passes through the stomach through the gastrostomy into the jejunum (the second portion of the small intestine). From my understanding his body will absorb more of his feedings this way, eliminate so fussiness and acid reflux. They were talking about doing a continuous feeding (18-22 hrs per day). I'm not sure how this kind of feeding is going to work with a very active baby. Kai is scheduled to have this procedure done on September 24th. We should find out more what his feeding plan is going to be early this next week.

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