It's been a little while since I have posted an update about Kai. Kai is doing good. Kai is weighing in at 11 lbs 13.4 ozs and is 22 1/2 inches long. Last week Kai had an echo done on his heart and a scope procedure done. We have not heard the results on those yet. On Monday, Kai had another ABR hearing test done and that came back the same as the previous time. We are waiting to hear back from his ENT doctor to see what she wants to do with him. There has been some talk about possible hearing aides, but we won't know until we talk to the ENT doctor. Today Kai had appointments up in the cities. His first visit was with the pain doctor. They upped his Tylenol (as needed basis) dose. We talked about the plan with the tramadol and going to try the same dose the next time it is needed and see how he does with it. At this point, the pain medicine is only going to be used on a needed basis. Next he visited the developmental doctor. I think this doctor was a little surprise on how well Kai is doing. Cognitively, Kai seems to be pretty much on track with a normal 3 month old. This is a huge relief! This doctor would like us to work on have Kai more propped up (in like almost a sitting position) and work with build his head control. The last and longest appointment was the feeding clinic. There Kai worked with a nurse, dietitian, occupational therapy and speech therapy. They would like us to work back into the every 3 hour feedings and start decreasing his overnight drip feeding. We are to continue to work with bottling him. He is having a swallow study done on Monday. We are to do gentle range of motion with his hands so that he can use them to start grasping. They are suggesting for him to get McKie splints for his hands. I have to talk to his orthopedic doctor about this on Monday. We will be working with a few different oral stimulation. We also need to work with positioning with him. On Monday, he goes to the orthopedic doctor for his hips. I am very anxious for this appointment. I am eager to find out what the plan is for his hips. We have also added another person to his team, the deaf and hard of hearing early intervention teacher. Otherwise right now Kai is doing good. Majority of the time, he is a happy content baby. He smiles a lot, coos and loves to be talked to.
Gavin and Jace have both started ECFE. They each have their own night to go. Gavin just loves any kind of school. He is still going to Sunday school as well. He is all registered for preschool for the fall. He will be going to Little Lambs Preschool that is at our church. Gavin loves to ask a lot of questions. Right now, he is really into the days of the week and feelings. Jace...ahhh, where do we begin with him ;) He is definitely our wild child. He is a very busy boy and keeps us on our toes at all times. We have been concerned about a few things with Jace, so we have reached out for a little help. Jace just had a sensory assessment done on him. We don't know the results of that yet. It seems that Jace doesn't know how to burn off the energy that he has. One suggestion is for him to jump on a mini trampoline. So the other day, we went and got one. He loves jumping on it. This could also be an alternative to his hard core rocking that he does. Today he had visited his regular doctor for the concerns that we have. Autism was brought up as a possibility. So we are going to be looking into having an assement done on Jace for this. Otherwise, Jace is doing good. He is learning more and more words. I think his speech has really improved (thanks Becky!).
As far as me and Levi.....well, it's never a dull moment at our house and we are wiped out!
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